Good News: Molecular Remission

• We got the good news yesterday that the P210 BCR/ABL mutation, which has been causing my leukemia, is no longer detectable (via the most sensitive PCR/molecular test).  This means that I am now definitely in remission and that the transplant (with its graft vs. leukemia effect) and my ongoing consumption of Sprycel/dasatinib (the oral chemo/tyrosine kinase inhibitor) seems to be working.
• After 10 months of this battle against leukemia, it’s a tremendous relief to have made it to this stage.  We’re mindful of the fact that relapse remains a possibility:  even though my leukemia seems to be gone, there’s always a chance that a rogue, undetected mutation (or several) is still lurking, and trying to restart the leukemia.  That said, getting to molecular remission is a key step towards getting to a cure (which is generally defined as remaining in remission for 5 years).  All in all, we are feeling grateful and positive.
• We’re also trying to get organized to make our departure from Seattle.  Due to my recent bout of infections (and the the complex cocktail of IV medications that I continue to need to receive), the team here wants to give it a bit more time before they set a definite discharge date, particularly since I will be needing to work with a new hematologist/oncologist in the DC area for my post transplant care.  At this point, we hope to be leaving Seattle by the end of September.  Fingers crossed.
• SCCA will be keeping me busy with a full schedule of check-out tests and evaluations over the next few days/weeks.  I was glad today to get through my last lumbar puncture with intrathecal chemo.  I sure won’t miss those.
• The girls returned to Hutch School yesterday and are happy seeing their old teachers and old and new friends.  We’re eager to get them into their new school in Maryland ASAP, but are grateful as always that the Hutch School is here when we need it.
• We also are deeply grateful for all of the support that all of you continue to demonstrate.  Thanks for helping us to get this far.