Total Body Irradiation

June 14, 2008

  • It’s Saturday evening in Seattle.  I’m three-quarters of the way through my course of total body irradiation (TBI) , which has been a memorable, and unfun, experience.  Since Thursday, my days have revolved around twice daily trips (morning and evening) to the basement of the UWMC center, where the radiation treatment facility is located.  The process is not painful, but involves some stress (voluntarily subjecting myself to repeated doses of radiation therapy has involved a bit of a mental adjustment), and I’m starting now to feel the after-effects of the radiation.
  • The actual process of getting the TBI involves sitting on, and in, a strange looking contraption with a bicycle seat and handlebars which is meant to hold my body still and precisely angled towards the accelerator which then zaps me with four five-minute doses of photon rays (two to my front side and two to my back).  The setting for this process is a basement room with an 18 inch thick door.  Given the toxicity of the therapy being administered, the technicians who run things need to be out of the room, but can communicate with me via an intercom and keep an eye on things with a closed-circuit TV.
  • The technicians have repeatedly urged me to listen to music from their motley selection of CDs during the TBI.  I have mostly demurred, preferring instead to try to get in a zone by listening to the clicking buzz of the photon beam from the accelerator, or mentally escaping by replaying certain familiar golf courses in my mind (Peshawar, Mbabane Club, Royal Swazi, Mhlambanyatsi Forest Club, the Neshobe, and Ravenwood).  This afternoon, the techs again urged me to try listening to music, so I went with “Sergeant Pepper’s Lonely Hearts Club Band.”  I’m sure I will never again listen in quite the same way to “With a Little Help From My Friends.”
  • Since I’m getting the TBI in fractionated doses (i.e., not all at once), the toxicity of the individual doses is not great.  The cumulative effect is another matter.  I’ve been feeling a strangely dry mouth and throat, some new taste changes, stomach upset and loss of appetite, and an increasingly crushing fatique.  Nausea can also be pretty common, but so far the medications Zofran and Ativan seem to be holding my nausea at bay.
  • The net effect of the TBI–which was proceeded, as you may recall, by three days of chemo–will be that by Monday, June 16, my marrow will have been “conditioned” (if we’re using the euphemism; ablated, if we’re using the term of art; destroyed, if we are speaking plainly), and I’ll be ready to receive my new stem cells.  No word yet on what time of day on Monday this will occur, but as with most transplant patients, I’m looking forward to the event (my new birthday, in transplant lingo) with considerable anticipation.
  • I’ve passed most of the time lately dozing (during the day), sleeping (at night), and sitting up occasionally for various doctors, nurses, and physicians assistants to perform a multitude of checks.  And, of course, I do the twice daily marches to and from the TBI in the basement.  It’s not much fun, but it all seems to be going according to plan, with no surprises, and for this I am grateful.  Lisa is with me here at the hospital (including through the night).  Caleb and the girls also visit during the day.  I wish I were better company.
  • The U.S. Open at Torrey Pines has also provided some helpful diversions.  Tiger’s heroics on Friday and Saturday afternoons have been typically amazing.  I’m hoping that the only Sunday drama that I experience will be vicariously through the golf telecast.

11 Responses to “Total Body Irradiation”

  1. Judy Olinick Says:

    Dear Roger
    The radiation has done nothing to harm your clear-eyed and courageous observation and reporting. May it and the chemo and stem cells accomplish exactly what they’re meant to do and may you spend your next Father’s Day and many many more in happy family activities (and maybe some golf.)
    Warm greetings to all of you, including Caleb of course, and your cheering sections back in Vermont and New York–and more good wishes than I could possibly express
    Judy

  2. Catherine Says:

    This sounds very tough and I am sure all your friends join me in wishing we could do more. Good luck tomorrow, we will all be thinking of you, Lisa and the girls.

    Catherine


  3. We’re rooting for you-and Tiger, of course! We know hoe strong you are and now you have your whole family and ALL of your many friends pulling for you. Breathe deeply and remember: “The light is in you, the light goes through you, the light surrounds you; you are the light.” Courage, as the French say.

    Love,
    Holly

  4. Sandra Rempel Says:

    Bob and I keep you all in our personal thoughts and prayers, especially now as you prepare yourself, so bravely for the big day tomorrow. May I add that we, at Trinity Lutheran Church, Fort Erie, Ontario have been praying for you each and every week since your ordeal began. To-day we offered a very “special ” prayer and we are hoping you will feel strength and power from those prayers and it will help you to get through, so that you will be able to look back and say “Thank God it is all behind me now-I look to the future!”. Peace to all!
    cousin Sandra & Bob

  5. lea Says:

    Roger-

    Thanks for the post. All of us get worried when there is too much silence during these tough times. Just so you know- I did not post much (my husband did a bunch of the writing) when I was feeling yucky. Even having the TV on sometimes made me dizzy and I never did TBI! You are not suppose to be good company anytime soon- you are suppose to REST. Your body needs this rest as so much is happening inside.

    Happy Fathers Day- you are doing amazingly well. It is also expected and ok for you to not feel well too:)!
    -Lea

  6. Suzanne and Ken Nash Says:

    Dear Roger,
    Thank you for the update with your clear descriptions and for sharing your thoughts and feelings. Your courage continues to both uplift and humble us. Our hearts and prayers are with you, especially for the transplant starting tomorrow and the weeks to come.
    Our love to you, Lisa, and the girls-we look forward to seeing you in August.
    Suzanne and Ken

  7. kristin Says:

    hello from chevy chase – glad to hear the us open is providing a good distraction and some enjoyment … hope today goes well.
    best to lisa and iz and mimi too.
    kg

  8. Jennie Nash Says:

    Hi Roger!

    Hopeing that today (June 16) is your new birthday!

    Jennie Nash

  9. Peter Says:

    Bruce Banner has nothing on you now. Hopefully, your transformation will be the stuff of comic books and super-hero movies as well. Thinking of you,
    Peter

  10. John Buzbee Says:

    Hi Roger! Karim, Jim Peterson and I were driving through the Delta hinterlands yesterday, en route to seeing some of your favorite MEPI/HR contacts, and Karim noted that it was your transplant day. Had we known it was actually a transplant birthday, we would have broken into song, although broken would be the right word for the three of us singing. (Destroyed, your word of choice, would do as well.) And speaking of Sgt. Pepper’s, and trying not to sing out of key, is Washington one of those medicinal marijuana states? You won’t be able to get high with a little help from your friends in the government, but perhaps someone there without a security clearance can assist. (Note to RSO: I’m only kidding, sort of.) Anyway, know that we (sober professionals) are all thinking of you and the family.

  11. Sandra Rempel Says:

    Dear Roger & Lisa,
    Hooray! It’s behind you now, and hopefully each day will be brighter. The courage you both show is amazing. We are in awe of Lisa-a very brave and courageous woman. No one can imagine the strength it takes to be a “care-giver” and suppporter. The unsung heroes! Keep up the fight and only look ahead. We think of you constantly. Great photos by the way, Caleb! Love to you all, Cousin Sandra and Bob from Canada


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